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The Fourth Annual Meeting of the International Network for Pediatric Hemophilia: Current Challenges and Recommendations in the Clinical Care of Children with Hemophilia

机译:小儿血友病国际网络第四届年会:血友病儿童临床护理的当前挑战和建议

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摘要

The International Network for Pediatric Hemophilia (INPH) comprises a group of physicians committed to the unique care of and challenges facing pediatric hemophilia patients. By collaborating on an international level, extensive experience can be shared on current practice, new trends can be discussed and scientifically valid studies can be developed and performed. The three overall objectives of the group (scientific progress, education and networking) are achieved at each annual meeting starting with a round table on the members’ current research and clinical activities, project reports of INPH study initiatives, followed by invited educational presentations and interactive discussions. The meetings close with proposals of new projects, future directions of the group and concluding remarks. The Fourth Annual INPH meeting, held in 2009 in Boston, MA, USA, focused on inhibitor development and hemophilic arthropathy in the clinical care of children with hemophilia.
机译:国际小儿血友病网络(INPH)由一群致力于小儿血友病患者的独特护理和面临挑战的医师组成。通过在国际层面上的合作,可以在当前实践中分享广泛的经验,可以讨论新的趋势,并且可以开发和进行具有科学依据的研究。该小组的三个总体目标(科学进步,教育和网络)在每年的年度会议上实现,首先是成员当前研究和临床活动的圆桌会议,INPH研究计划的项目报告,然后是受邀的教育演讲和互动讨论。会议以新项目的提案,小组的未来方向和总结发言结束。 2009年在美国马萨诸塞州波士顿举行的第四届INPH年度会议重点讨论了血友病儿童临床护理中的抑制剂开发和血友病性关节病。

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